Merge Live On-Demand kicked off yesterday with a set of outstanding industry sessions. To me, the most powerful was Regina Holliday’s presentation. Regina told us the story of her family and her late husband Frederick, and their struggle to get appropriate care for him as he battled kidney cancer.
Regina’s story, sadly, isn’t that unique. During Fred’s 11 weeks of hospitalization, they struggled to get information about his situation, weren’t able to access his medical record, and as a result, the providers at the five different facilities where Fred received care didn’t have his complete medical history. His records were available…though only in paper form from an office in the hospital basement where they could be accessed for $.73 per page after a 21-day wait.
Regina, however, tells her story in a unique way. She’s an artist, so in addition to being a passionate patient advocate and speaker, she also shares her story through amazing paintings and murals. Take a look at her Medical Advocacy Blog
to see what I mean and definitely check out the painting
she created specifically for the conference.
While I’m sad for what Regina and her family experienced, I’m thankful for people like her and others who are willing to share their story, become advocates for change and remind us all why making information available to providers and patients can really make a difference in patient care. Like someone commented on her session…
“Her talk was a real eye opener and a great talk to show all of us that we all can make a difference. And it does take all of us to do it
For the rest of the week, there will be a lot of conversations at Merge Live about Meaningful Use and other programs that are driving our industry towards image and information exchange. While it’s easy to get lost in the mechanics of how it will all happen, stories from people like Regina remind us of the benefit of making information exchange happen.
for being part of Merge Live